Hemophilia 5 - Understanding Inhibitors
2.3 هزار بار بازدید -
10 سال پیش
-
Inhibitors for treatment of Hemophilia.
Inhibitors for treatment of Hemophilia. To learn more visit:
https://teens.aboutkidshealth.ca/Hemo...
This is the fifth video in a series created for a website devoted to helping boys with Hemophilia transition to adult healthcare.
This video is provided for general information only. It does not replace a diagnosis or medical advice from a healthcare professional who has examined your child and understands their unique needs. Please speak with your doctor to check if the content is suitable for your situation.
Cette vidéo sert à donner des renseignements généraux seulement. Elle ne remplace pas le diagnostic ou les conseils médicaux d'un professionnel de la santé qui a examiné votre enfant et comprend ses besoins uniques. Veuillez consulter votre médecin pour vérifier si le contenu convient à votre situation.
Follow us on:
Facebook: Facebook: aboutkidshealth
Twitter: Twitter: aboutkidshealth
Pinterest: Pinterest: aboutkidshealth
Subscribe to the AboutKidsHealth YouTube channel: http://ow.ly/CzrN50ClHN3
VIDEO TRANSCRIPT:
So, these days, the development of an inhibitor is the most feared complication in hemophilia. An inhibitor is when your body starts to reject the factor that you're putting into it. In patients who don't make any of their own factor, when we give them factor their body may see that factor as being a foreign protein. So consequently, some patients their bodies will produce these things called antibodies, which will then destroy whatever factor we put into their body. This inhibitor is your body's natural defense system. It sees something being introduced, so here we come giving you factor a two to stop the bleed but your body's going 'Oh no something foreign's here, we don't recognize that!' and they eat it up so your factor isn't working to stop that bleed and you continue to bleed. So most inhibitors we know occur in the first few years of life. when children are initially exposed to factor. The treatment team will sit down and talk about what's best for this family, this child, what do we want to do? We need to get those inhibitors down.
So, they might choose a treatment plan that would be giving factor eight every day, so the body will just start to say 'Okay, maybe this isn't a bad thing. Maybe it is okay.' And we hope what we do is we call it overwhelm it. You get like, not super doses of factor, but you just keep pumping factor into your body, trying to get your body to start to recognize it as something that's trying to help it instead of trying to harm it, like a virus or something that gets into your blood stream. For me, you know growing up having severe haemophilia A, a history of inhibitors, life was really difficult.
I didn't formally do gym until grade six. And the reason I was able to gym in grade six is that, you know, after the immune tolerance program, my inhibitor was gone. So, after that, I was able to be active and not bleed. And even if I did bleed, it was able to be controlled.
I wouldn't trade working in hemophilia because it's an amazing group, and the healthcare professionals, patients and families, and the society, it really is a privilege to be a part of people's lives and a part of the journey. I get as much as I give.
#hemophilia
#bleedingdisorders
#chronicconditions
https://teens.aboutkidshealth.ca/Hemo...
This is the fifth video in a series created for a website devoted to helping boys with Hemophilia transition to adult healthcare.
This video is provided for general information only. It does not replace a diagnosis or medical advice from a healthcare professional who has examined your child and understands their unique needs. Please speak with your doctor to check if the content is suitable for your situation.
Cette vidéo sert à donner des renseignements généraux seulement. Elle ne remplace pas le diagnostic ou les conseils médicaux d'un professionnel de la santé qui a examiné votre enfant et comprend ses besoins uniques. Veuillez consulter votre médecin pour vérifier si le contenu convient à votre situation.
Follow us on:
Facebook: Facebook: aboutkidshealth
Twitter: Twitter: aboutkidshealth
Pinterest: Pinterest: aboutkidshealth
Subscribe to the AboutKidsHealth YouTube channel: http://ow.ly/CzrN50ClHN3
VIDEO TRANSCRIPT:
So, these days, the development of an inhibitor is the most feared complication in hemophilia. An inhibitor is when your body starts to reject the factor that you're putting into it. In patients who don't make any of their own factor, when we give them factor their body may see that factor as being a foreign protein. So consequently, some patients their bodies will produce these things called antibodies, which will then destroy whatever factor we put into their body. This inhibitor is your body's natural defense system. It sees something being introduced, so here we come giving you factor a two to stop the bleed but your body's going 'Oh no something foreign's here, we don't recognize that!' and they eat it up so your factor isn't working to stop that bleed and you continue to bleed. So most inhibitors we know occur in the first few years of life. when children are initially exposed to factor. The treatment team will sit down and talk about what's best for this family, this child, what do we want to do? We need to get those inhibitors down.
So, they might choose a treatment plan that would be giving factor eight every day, so the body will just start to say 'Okay, maybe this isn't a bad thing. Maybe it is okay.' And we hope what we do is we call it overwhelm it. You get like, not super doses of factor, but you just keep pumping factor into your body, trying to get your body to start to recognize it as something that's trying to help it instead of trying to harm it, like a virus or something that gets into your blood stream. For me, you know growing up having severe haemophilia A, a history of inhibitors, life was really difficult.
I didn't formally do gym until grade six. And the reason I was able to gym in grade six is that, you know, after the immune tolerance program, my inhibitor was gone. So, after that, I was able to be active and not bleed. And even if I did bleed, it was able to be controlled.
I wouldn't trade working in hemophilia because it's an amazing group, and the healthcare professionals, patients and families, and the society, it really is a privilege to be a part of people's lives and a part of the journey. I get as much as I give.
#hemophilia
#bleedingdisorders
#chronicconditions
10 سال پیش
در تاریخ 1393/11/07 منتشر شده
است.
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