ResearchCon 2024 | Participating in Clinical Research: What You Need to Know
60 بار بازدید -
2 ماه پیش
-
Gain a comprehensive understanding of
Gain a comprehensive understanding of clinical trials, from enrollment to safety protocols, as clinical researchers, Katie Howe, MS, CCRC and Heather Hathorne, PhD, RRT, CCRC, provide insights into the process. You'll also hear firsthand accounts from two members of the CF community, Britney Earwood and Martha Garvey, about their emotional experiences, risk assessment, and the profound importance of clinical trial participation. Finally, explore available resources for finding clinical trials relevant to CF and hear a Q&A session.
Originally recorded April 30, 2024.
0:00:00 | Participating in Clinical Research: What You Need to Know
0:01:26 | The basics of clinical trials
0:04:02 | Phases of clinical trials
0:08:26 | Safety and risks of clinical trials
0:13:10 | How to find clinical trials?
0:15:38 | Where to learn about how clinical trials work?
0:16:08 | Where can I find resources for genetic therapies?
0:17:48 | How do I get involved in research?
0:19:07 | What is Community Voice?
0:20:50 | Introducing Britney Earwood, a parent of a person with CF
0:21:19 | Introducing Martha Garvey, an adult with CF
0:21:51 | Community members share about participating in a clinical trial
0:25:45 | What are the benefits of participating in a clinical trial?
0:31:16 | How do you assess the risks of participating in clinical trials?
0:36:06 | Clinical trials vs clinic visit experiences
0:40:20 | What do you wish you had known about clinical trials?
0:43:00 | How to make clinical trial days fun?
0:48:49 | The ‘why’ of participating in clinical trials
0:55:19 | How has being a part of a clinical trial changed your outlook on treatment?
0:57:15 | What interested you about phage therapy?
0:58:45 | How to find out about clinical trials outside of your clinic?
1:01:55 | Mental health clinical trials
1:03:55 | How do you balance spotting symptoms as a parent?
1:05:09 | How do phage therapies work?
1:06:59 | How do you find out about what types of clinical trials exist?
Originally recorded April 30, 2024.
0:00:00 | Participating in Clinical Research: What You Need to Know
0:01:26 | The basics of clinical trials
0:04:02 | Phases of clinical trials
0:08:26 | Safety and risks of clinical trials
0:13:10 | How to find clinical trials?
0:15:38 | Where to learn about how clinical trials work?
0:16:08 | Where can I find resources for genetic therapies?
0:17:48 | How do I get involved in research?
0:19:07 | What is Community Voice?
0:20:50 | Introducing Britney Earwood, a parent of a person with CF
0:21:19 | Introducing Martha Garvey, an adult with CF
0:21:51 | Community members share about participating in a clinical trial
0:25:45 | What are the benefits of participating in a clinical trial?
0:31:16 | How do you assess the risks of participating in clinical trials?
0:36:06 | Clinical trials vs clinic visit experiences
0:40:20 | What do you wish you had known about clinical trials?
0:43:00 | How to make clinical trial days fun?
0:48:49 | The ‘why’ of participating in clinical trials
0:55:19 | How has being a part of a clinical trial changed your outlook on treatment?
0:57:15 | What interested you about phage therapy?
0:58:45 | How to find out about clinical trials outside of your clinic?
1:01:55 | Mental health clinical trials
1:03:55 | How do you balance spotting symptoms as a parent?
1:05:09 | How do phage therapies work?
1:06:59 | How do you find out about what types of clinical trials exist?
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