Hurler/MPS: The road to diagnosis - Docs didn't look at the Whole Child
6.8 هزار بار بازدید -
6 سال پیش
-
"Docs didn't look at the
"Docs didn't look at the Whole Child: It took a year to get the Hurler diagnosis."
Parents of a 4-year old son with Hurler Syndrome talk about the road to diagnosis and all the signs the doctors missed. "When you have children coming in with multiple problems, look at the child as a whole. The hand doctor was looking at his hands. the hip doctor was looking at his hips." Mom talks about how she has made peace with that.
Parents of a 4-year old son with Hurler Syndrome talk about the road to diagnosis and all the signs the doctors missed. "When you have children coming in with multiple problems, look at the child as a whole. The hand doctor was looking at his hands. the hip doctor was looking at his hips." Mom talks about how she has made peace with that.
6 سال پیش
در تاریخ 1397/05/05 منتشر شده
است.
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