Guidelines for the Care of People with Spina Bifida

The Guidelines provide evidence-based and medical expert guidance on providing care for people with Spina Bifida—from birth through adulthood. The Guidelines will be available on the Spina Bifida Association’s (SBA) website: spinabifidaassociation.org/guidelines. Shortly after that, they will be incorporated into SBA's new website, where they will be searchable by each of the 25 topic areas and age. We encourage you to view the Guidelines and share them with your health care providers. We are deeply indebted to the nearly 100 volunteer medical experts from around the world who worked tirelessly for three years to create this seminal work. While we thank all the authors of the Guidelines, we extend a special thank you to the Executive Committee who gave countless hours to ensure that people with Spina Bifida receive the right care at the right time.

The Executive Committee includes:
 Patricia Beierwaltes, DPN, C-PNP, Guideline Steering Committee Co-Chair;
Assistant Professor, Nursing, Minnesota State University, Mankato
 Timothy J. Brei, MD, Spina Bifida Association Medical Director;
Developmental Pediatrician, Professor, Seattle Children’s Hospital
 Nienke Dosa MD, MPH, Guideline Steering Committee Co-Chair; Upstate
Foundation Professor of Child Health Policy; SUNY Upstate Medical
University
 Brad E. Dicianno, MD, Guideline Steering Committee Co-Chair; Associate
Medical Director and Chair of Spina Bifida Association’s Professional
Advisory Council; Associate Professor, Department of Physical Medicine
and Rehabilitation, University of Pittsburgh School of Medicine

View Guidelines here at www.spinabifidaassociation.org/guidelines or view the direct at the PDF at https://goo.gl/psUKt1

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