Living with primary progressive aphasia | Jill's story

Jill has a rare and devastating form of frontotemporal dementia (FTD) called non-fluent variant primary progressive aphasia (PPA). In this video, Jill's husband, Mark, describes the challenges of arriving at a diagnosis of PPA, managing her symptoms, and finding meaning and joy in life whilst living with PPA.

PPA is a debilitating neurogenerative brain condition that affects speech and language. PPA generally presents before the age of 65 years, significantly impacting family, vocational, social and community roles. Sadly, there is no cure for this disease. For more information on PPA and FTD, visit: https://frontierftd.org

Jill and Mark's children are raising funds to find more effective treatments for PPA. For more information on their initiative and how to donate, visit: https://crowdfunding.sydney.edu.au/su...

All donations raised are tax deductible in Australia and 100% of the proceeds will go the FRONTIER Research Group. FRONTIER is a specialist research group at the Brain and Mind Centre, University of Sydney, dedicated to improving the lives of people living with frontotemporal dementia.

To keep up to date with FRONTIER's latest research on PPA and FTD, visit:
Twitter: Frontier_Usyd
Facebook: frontierbrainandmind

Video production: https://www.jonathanbakercamera.com
Music: SoundCloud: peppinamusic