Community Voices: 'Living with vEDS' Isabella Marin, RN

The Ehlers-Danlos Society
The Ehlers-Danlos Society
3.7 هزار بار بازدید - 3 سال پیش - Isabella Marin RN, BSN was
Isabella Marin RN, BSN was diagnosed with vascular Ehlers-Danlos syndrome (vEDS) in 2004. She is the only person in her family with vEDS, and up until recently, was the only person in her city with the vascular type of Ehlers-Danlos syndrome.

After many years of struggling to educate doctors and raise awareness, she has devoted her life to becoming a vEDS advocate. She holds two bachelor’s degrees in psychology and nursing. Her lifelong goal is to use her own patient experiences and education background to help those diagnosed with vEDS become their own advocates, and to help improve the quality of life for those affected.
3 سال پیش در تاریخ 1400/06/24 منتشر شده است.
3,731 بـار بازدید شده
... بیشتر