🎉Weekly Facebook Live 🎉

Wednesday 23rd September 9am 2021 AEST Dear diary…week, what week is it?? I started these weekly lives 2nd Wednesday of September in 2020, so a year ago!!Their like a diary and document for my rare disability journey. I don’t always do these lives longer than 5 minutes for I have noticed I have a respiratory condition which I spoke to my speech therapist yesterday. It may be longer sometimes, it depends on how I feel 🤪 I’ve never had to time my lives. Just how I feel. I also noticed my connection on knowing how much voice to use and the strength of forming words. It does take a bit out of me 😒 Doesn’t help that being in the spotlight freaks me out but I do these lives for confidence, tell my story, mention what helps me that may help you 💃 I stuff up words or how/what to say and I have a thought stutter (brain fart 😂) and I’m ok with that. I do have an older brother that has this disability more advanced than I have. The next step in my journey I have noticed and am in the process (been approved btw!!) of with my helpful and understanding OT, is Im getting a scooter. I do have a scooter for hire atm for tor the process to get one can take a bit and I know I need it. Not so much with this lovely pandemic 😷 My walker helps but a scooter will give me more freedom to get around. It will make my life a lot easier. I found out, the lighter the scooters are, the more unsafe they are, same with awalker 😒 Yes it would be easier to transport a light scooter and walker, but it would be unsafe 😣 The lightest and safest scooter I looked at is 15kg. It’s in the process of being funded. Also, the scooter place can make a strap on the back to lug my walker around too . At the moment I need both 🥴 I’ve already set up taxis or maxi taxis to get to places if family or friends are unable help at the time, I’m still used to last minute 😣 I have a lot set up so it takes the pressure off family and friends, I know how hard it can be. Every step about my journey may not look or seem like much, but for me it is. I’m honest about what is happening to me for as I mentioned above it is also for another not just about me I started getting meal prep assistance. I’m Open for any meal ideas. I do the ketogenic lifestyle/diet so I will swap and change 😊 I have to wear glasses for long distance and it’s ok to wear 24/7, I checked. Instead of taking them on and off, I choose to wear then 24/7. Here s a link I found, awesome to follow if your on a video call and don’t want the reflection shown, if you don’t have the anti reflective coating.    • How to Look Good on Zoom with GLASSES...   Questions are welcomed by commenting down below or private message if you feel more comfortable that way. On a live I may not always respond to a question in the comments but I will answer 💪 Don’t hesitate to ask me anything. Questions are welcomed by commenting down below or private message if you feel more comfortable that way. Find value in my lives?? Feel free to share away for I am only one person and are so grateful that you do 🙏 Want to watch my weekly lives direct that is on every Wednesday 9am AEST?? Here is my Facebook link www.facebook.com/JFK842 I did a post rather than another live and not mentioning things www.facebook.com/545531037/posts/10161468745206038… . . . . . #weeklylive #justfollowkindness #gettingitdone #positiveandconsistant #motivated #raredisability #disabilitylife #perraultsyndrome #hearinglossawareness #justkeepswimming