What is FSHD? // Muscular Dystrophy

dude-ability
dude-ability
237 بار بازدید - 7 ماه پیش - This week's video is all
This week's video is all about FSHD. It is a form of muscular dystrophy that I personally have and have lived with for the last 10 years. I go into what it is, how it affects people and a bit about my experience living with it. Expect to learn how it progresses, what causes it and much more.

Here are some additional resources if you'd like to learn more:
Facioscapulohumeral Muscular Dystrophy
Facioscapulohumeral muscular dystroph... (this one is really good!)
FSHD Muscular Dystrophy 101 (warning: this one can be a bit confronting)
https://www.fshdsociety.org/what-is-f...
___________________________________________________________________________

My name is Kalvin and I'm an Australian guy in his mid-20s with a condition called FSHD. It is a form of muscular dystrophy which affects various parts of my body, limiting my mobility. I was diagnosed as a 14-year old and have only recently accepted it as part of my life.

I will be documenting my journey living with a progressive disability, whatever that may entail. Expect to see a whole lot of disability-related advice, updates on how I'm dealing with things, activities I pursue and a whole lot more.

My goal with this channel is to hopefully inspire people with disabilities to go out there and give things a crack. I aim to spread some awareness about muscular dystrophy and build a community of people to ensure that no one feels like they're fighting this on their own.

Stay strong ♥


___________________________________________________________________________

Chapters:
0:00 intro
0:24 what is it?
0:46 what parts of the body does it affect?
2:18 how do you get it?
3:11 how does it vary from person to person?
4:32 how does it progress?
5:14 a bit about my experience
7:44 outro
___________________________________________________________________________

Music:

► Artist Attribution
Music By: "KaizanBlu"
Track Name: "Space"
• Instagram -  

/ kaizanblu  
• SoundCloud -  

/ kaizanblu  
• Facebook -  

/ kaizanblumusic  
• TikTok - @kaizanblu http://vm.tiktok.com/aCYwfx/
• YouTube -  

/ @kaizanblu  
• DOWNLOAD @ https://www.chilloutrecordsmusic.com
Licence: Creative Commons Attribution-ShareAlike 4.0 International (CC BY-SA 4.0)
- Full licence here: https://creativecommons.org/licenses
• Music released by: Chill Out Records @ https://goo.gl/fh3rEJ
7 ماه پیش در تاریخ 1402/11/14 منتشر شده است.
237 بـار بازدید شده
... بیشتر