Rebecca's story

Rebecca has Ehlers-Danlos Syndrome (EDS) Type 3, also known as Hypermobile EDS. EDS is the name for a group of rare inherited conditions that affect connective tissue. These provide support in skin, tendons, ligaments, blood vessels, internal organs and bones. There are several different types of EDS that may share some symptoms, including: an increased range of joint movement (joint hypermobility); stretchy skin; fragile skin that breaks or bruises easily. The different types of EDS are caused by faults in certain genes that make connective tissue weaker. Sometimes the faulty gene isn’t inherited, but occurs in the person for the first time. EDS can affect people in different ways. For some the condition is relatively mild, while for others their symptoms can have a significant impact on their life. Some of the rare severe types can be life-threatening.

Diagnosis of EDS isn't easy. There are very few specialists with the knowledge to diagnose EDS in the UK, many people with suspected EDS remain undiagnosed​.

For more information, please visit: https://www.ehlers-danlos.org/

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