Grayson, a story about neurofibromatosis type 1

ctfaustralia
ctfaustralia
17.5 هزار بار بازدید - پارسال - What is it really like
What is it really like to live with a condition like neurofibromatosis?

This video provides a window into a world that most people are unaware exists and is difficult to explain.

In partnership with Alexion, this video provides a small insight into life with NF1 and the ongoing burden of disease for both Grayson and his family.

The Children's Tumour Foundation is the only patient advocacy and support services for children, adults and their families in Australia. To learn more about us or the condition, go to www.ctf.org.au or follow us @ctfaustralia on Facebook and Instagram.
پارسال در تاریخ 1402/03/16 منتشر شده است.
17,561 بـار بازدید شده
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