Conversations With...Our Community | Series 1, Episode 2: Pain
3.5 هزار بار بازدید -
3 سال پیش
-
CW: Contains discussion of suicide.Conversations
CW: Contains discussion of suicide.
Conversations With....Our Community Series features members of the EDS and HSD community, from all around the world, living with different subtypes of EDS and of HSD, about life, relationships, physical and mental health, diagnosis, coping, and hopes for the future.
Dominique lives in Scotland and has classical EDS (cEDS). In cEDS there is increased skin fragility leading to atrophic scarring, significant bruising, and poor wound healing.
Faith lives in Michigan, USA, and lives with vascular EDS (vEDS). VEDS is a life-threatening disorder that affects all tissues, arteries, and internal organs making them extremely fragile. Those living with vEDS are at risk of sudden arterial or organ rupture.
Dominique and Faith join President of The Ehlers-Danlos Society, Lara Bloom, who lives with hypermobile EDS (hEDS) for Conversations with our Community, discussing the impact of pain.
Pain is a very common complaint both in virtually all types of Ehlers-Danlos syndromes (EDS), and in the hypermobility spectrum disorders (HSD), and the intensity and severity of this pain can be as severe in EDS or in HSD.
Living with pain is very challenging. This is a difficult topic to discuss and to have, but it's important to know that you're not alone if you're experiencing pain.
Here are some resources to support you:
Mental Health Resources: https://www.ehlers-danlos.com/mental-...
Let's Chat Virtual Groups: https://www.ehlers-danlos.com/virtual...
EDS and HSD Helpline: https://www.ehlers-danlos.com/eds-hel...
Inspire Message Board: https://www.inspire.com/groups/eds-an...
Conversations With....Our Community Series features members of the EDS and HSD community, from all around the world, living with different subtypes of EDS and of HSD, about life, relationships, physical and mental health, diagnosis, coping, and hopes for the future.
Dominique lives in Scotland and has classical EDS (cEDS). In cEDS there is increased skin fragility leading to atrophic scarring, significant bruising, and poor wound healing.
Faith lives in Michigan, USA, and lives with vascular EDS (vEDS). VEDS is a life-threatening disorder that affects all tissues, arteries, and internal organs making them extremely fragile. Those living with vEDS are at risk of sudden arterial or organ rupture.
Dominique and Faith join President of The Ehlers-Danlos Society, Lara Bloom, who lives with hypermobile EDS (hEDS) for Conversations with our Community, discussing the impact of pain.
Pain is a very common complaint both in virtually all types of Ehlers-Danlos syndromes (EDS), and in the hypermobility spectrum disorders (HSD), and the intensity and severity of this pain can be as severe in EDS or in HSD.
Living with pain is very challenging. This is a difficult topic to discuss and to have, but it's important to know that you're not alone if you're experiencing pain.
Here are some resources to support you:
Mental Health Resources: https://www.ehlers-danlos.com/mental-...
Let's Chat Virtual Groups: https://www.ehlers-danlos.com/virtual...
EDS and HSD Helpline: https://www.ehlers-danlos.com/eds-hel...
Inspire Message Board: https://www.inspire.com/groups/eds-an...
3 سال پیش
در تاریخ 1400/02/24 منتشر شده
است.
3,547
بـار بازدید شده