Ehlers Danlos Syndrome - Dying to Live

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I made this video to represent our families battle with Ehlers-Danlos Syndrome type IV. We have been working with a foundation called Ehlers-Danlos Network CARES Inc. and I made this video for the contest we entered to win $25,000 and we succeeded. My aunt died having my cousin 14 years ago and we were told she probably had lupus.....so for 13 years, my mother had him repeated tested for lupus until he had another rare disorder come up that she knew my aunt had. Doctors kept misdiagnosing it as well. My mother found a picture on the internet that matched the skin disorder and read that it was associated with EDS. She asked the doctors to test London for both since they described my aunt to a T and on her birthday last year we got the notice that he tested positive for both. We pray that the research project that is under way will result in a treatment for EDS.

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