Saying Sarcoidosis with Policy Advocacy

As Sarcoidosis Awareness Month comes to a close, please join us for an exciting webinar about legislative and policy advocacy! This discussion will discuss what legislative and policy advocacy is, FSR’s efforts to advocate on behalf of patients, and opportunities for you to get engaged. There will be a Q&A session following the presentation. Help us continue moving the needle forward through advocacy! This event is sponsored by ANI Pharmaceuticals, Kinevant Sciences, Inc., and Mallinckrodt Pharmaceuticals.  For more information on sarcoidosis, please visit: www.stopsarcoidosis.org/. FSR Resources: • Policy & Advocacy Toolkit: https: //www.stopsarcoidosis.org/wp-content/uploads/FSR-Legislative-and-Policy-Toolkit-FINAL-11.29.22.pdf • Patient Focused Drug Development Meeting: www.stopsarcoidosis.org/pfdd/ • Congressional Briefing Video:    • FSR Congressional Briefing and Gala 2023   • Patient Listening Session Webinar:    • Stories for Progress: An Update on FS...   EveryLife Foundation Resources: EveryLife Foundation for Rare Diseases: everylifefoundation.org/ • Rare Disease Week: everylifefoundation.org/rare-advocates/rare-diseas… • Rare Across America: everylifefoundation.org/rare-advocates/rare-across… • Congressional Caucus: everylifefoundation.org/rare-advocates/rarecaucus/… • YARR: everylifefoundation.org/young-adult-representative… • Rare Giving: everylifefoundation.org/rare-advocates/rare-giving… Other Resources: • PACT Act: www.va.gov/resources/the-pact-act-and-your-va-bene… • Find your elected officials: www.usa.gov/elected-officials