could I have avoided all this? #chronicillness

The mainstream medical system plays an important role in our modern day, saves many lives and can increase quality of life. However, it is also true that it is failing many chronic illness patients and therefore we need to see improvements in the future.

It took many years for me to become diagnosed and get the help I desperately needed. One of the reasons I share my story online is to help close that gap for future patients. I hope that in the future, patients can avoid unnessesary suffering and also potential harm.

I also share my healing and the help I have found both inside and out of the mainstream medical system to spread hope. I also hope that this could lead to patients having more options in the mainstream medical system other than “you’ll spend your life in bed, there is nothing we can do”

While I share the reality of what I experienced, I also want my message to be of hope and that healing is possible.

#chronicillness #chronicillnesshealing #healing #traumahealing #undiagnosed #endometriosis  #ehlersdanlossyndrome #EDS #pots #posturalorthostatictachycardiasyndrome #mals #feedingtube #cci #teenager #undiagnosedillness