A cystic fibrosis day-in-the-life with Gracie! CF Awareness Month 💙
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3 سال پیش
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🎥 We hope you tuned
🎥 We hope you tuned in to The Project last night to see Patrick Gower’s latest Trikafta story with the wonderful Gracie! 💙 Thank you so very much for sharing your story.
We wanted to show you a little bit more of what Gracie’s day consists of when it comes to treatment.
“My daily treatments often vary. I regularly have IV antibiotics, like in this video, which I manage in the mornings. When I’m not on IVs I almost always have either oral antibiotics or nebulisers. I am fortunate that my pancreas functions normally and I don’t need to take Creon. I do however do hours’ worth of airway clearance to get the mucus out of my lungs before it settles each day.
I usually go day by day and depending on my energy levels after physio, that’s how I navigate what I’m going to do. Whether I go to uni or do work from home. Sometimes it can feel like a lot to manage, but its also what we CFers see as normal as this has always been our day to day.”
Watch a day in Gracie’s life, CF edition 👇
If you’d like to support Kiwis with CF like Gracie, you can donate at www.giveafuture.org.nz
If you missed Gracie’s story on The Project, check it out here:
www.newshub.co.nz/home/new-zealand/2021/05/kiwi-gi…
3 سال پیش
در تاریخ 1400/02/21 منتشر شده
است.
665
بـار بازدید شده