Mandy: Why my EDS diagnosis was important

The Ehlers-Danlos Support UK
The Ehlers-Danlos Support UK
4.5 هزار بار بازدید - 3 سال پیش - Mandy explains why getting a
Mandy explains why getting a diagnosis was really important for her, finally getting a diagnosis at age 50.

Poor awareness of the conditions amongst medical professionals means they can go undiagnosed for many years, with people often being misdiagnosed with other conditions, being given incorrect or unnecessary treatment, or no treatment at all. Early diagnosis, and recognition of EDS and HSD, is key to improving quality of life.

A better understanding of EDS and HSD in primary care could make a huge difference to the day-to-day lives of many people struggling to manage their symptoms. Most GPs will not have had any specific training on EDS or other hypermobility-related disorders and therefore their awareness is not high. The EDS toolkit (one of several on the RCGP website) provides GPs with the best sources of reliable, up-to-date information to support you better rcgp.org.uk/eds

A greater understanding of the complexities and multi-systemic nature of EDS and some types of HSD from health professionals in all aspects of care, including rheumatology, physiotherapy, and nursing, can ensure a quicker diagnosis and more appropriate care.

Please help us to do more. Text EDS5 to 70500 to donate £5 today.
3 سال پیش در تاریخ 1400/02/28 منتشر شده است.
4,573 بـار بازدید شده
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