Baby has seizures, but misdiagnosed as Colic or Reflux

We took our baby to the pediatrician and a special "Colic Clinic" to determine what was wrong with him for the first 8 weeks of his life.  Unfortunately, he never displayed any "episodes" while visiting doctors.  So it wasn't really the fault of our doctors that he was misdiagnosed. We filmed our baby out of desperation and finally got some attention.  Before this video received any comments, we had already gone to the emergency room.  It was determined that he was having multiple different types of seizures all at once (no signs of "classic seizures").  After an MRI, we received the diagnosis that he has hemimegalencaphaly.  It's a rare malformation of the brain that causes seizures.  

Although he didn't display this intense episode all along, it finally got to this point after 6 or 7 weeks.  If your baby "jack-knifes" or rolls his eyes back, please take him/her to a neurologist or the ER. Our doctors asked all along if he turned blue, but he never did.  Just because your baby doesn't turn blue, doesn't mean he's not having seizures (if he's showing these other signs).

Thank you to all the concerned folks who sent us comments. We hope this video will be helpful to others in our situation.

• #education
• #reflux
• #seizure
• #baby
• #colic
• #misdiagnosis
• #hemimegalencephaly