Misdiagnosed: 3 Families Unite Over Rare Disease ALSP | A Journey for Awareness & Cure
228 بار بازدید -
2 سال پیش
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Three different families with different
Three different families with different misdiagnoses lead them on one journey to raise awareness and ultimately save their families from the devastation of #ALSP.
#ALSP is caused by a mutation on the #CSF1R gene. It is not #ALS, #frontotemporaldementia or #multiplesclerosis. It's an ultra-rare leukodystrophy.
#HDLS #ALSP #microglia #IAmALSP #sistershopefoundation #leukodystrophy #leukoencephalopathy #raredisease
#ALSP is caused by a mutation on the #CSF1R gene. It is not #ALS, #frontotemporaldementia or #multiplesclerosis. It's an ultra-rare leukodystrophy.
#HDLS #ALSP #microglia #IAmALSP #sistershopefoundation #leukodystrophy #leukoencephalopathy #raredisease
2 سال پیش
در تاریخ 1401/05/24 منتشر شده
است.
228
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