Documentary on Rare Diseases "Day by Day"

Day by day, produced as a project of the Croatian Alliance for Rare Diseases, the umbrella organization for rare diseases in Croatia, is the first documentary on rare diseases. It was made in cooperation with the Croatian Film Association, an association of non-professional film and video groups.

This documentary was developed in order to raise public awareness and that of all persons involved in the care for patients with rare diseases that the patients are not “some people somewhere” and that they need help to break free from the margins of society. Sometimes all that is needed to include patients in the everyday life of society and to help them live a better life is just a little bit of effort. As well as the social problem, the movie presents the difficulties in receiving adequate medical care and expensive therapies and raises the question of the patient’s position in the health system.

The movie presents real-life stories of people living with rare diseases and their family members, how they cope with medical and social problems in their everyday life, how society accepts them and how the diseases affect the quality of their lives.

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