MANAGING MY ARACHNOIDITIS : How I manage my daily symptoms

This video is an update on my arachnoiditis/ mild adhesive arachnoiditis (AA) and how I manage to ongoing daily symptoms. I have not had a major flare in over a year but I do have many ongoing daily symptoms I have to micro-manage throughout the day to get the most out of my time.

Here is a breakdown of content you can skip to:
0:00 Intro
0:28 Seven years of arachnoiditis/ mild AA
1:16 Current medication
1:57 Vitamins/ supplements/ diet
2:08 Walking physio
2:32 When people ask: How are you doing?
4:09 What does it feel like to have arachnoiditis/AA/ Spinal CSF Leak (active or in recovery)?
5:18 How did my fall cause arachnoiditis?
6:49 What does the arachnoiditis pain feel like?
9:49 CSF/ Spinal fluid flow issues
11:24 Standing is normally a better position for me
12:46 Higher Intracranial pressure (ICP) issues/ symptoms - common to those with arachnoiditis/ tarlov cysts and post spinal CSF leak
15:02 Problems with focus & concentration
18:33 How about driving a car?
19:07 Do I ever feel normal?
21:09 Do I have fears for the future?

For the full summary of my medical history and footage of my January 2021 arachnoiditis flare see this 5 min video: MY SPINAL CSF LEAK & ARACHNOIDITIS ST...

To read more about my arachnoiditis diagnosis in July 2020 and journey since then see: https://beckyhillblog.com/category/ar...

To view my Jan/ Feb 2021 arachnoiditis flare playlist including symptoms see: Arachnoiditis Flare January 2021

Twitter: Beckyhill3

#Arachnoiditis #Adhesivearachnoiditis #SpinalCsfLeak #CSFleak #TarlovCysts #SIH

UK CSF LEAK CHARITY: https://www.csfleak.info/
US CSF LEAK CHARITY: https://spinalcsfleak.org/
SPINAL CSF LEAKS: Clinical Presentation, Investigation Findings, and Treatment Outcomes of Spontaneous Intracranial Hypotension Syndrome (NHNN authors): https://jamanetwork.com/journals/jama...
ARACHNOIDITIS: ‘Arachnoiditis – Taming the Most Painful Pain’ Dr Forest Tennant video
Arachnoiditis—Taming the Most Painful...​​
ARACHNOIDITIS: Suspecting & Diagnosing Arachnoiditis (J. Antonio Aldrete) https://www.practicalpainmanagement.c...
IV STEROID TREATMENT: A medical paper supporting the use of steroids in treating early stage arachnoiditis and in the prevention of further adhesive arachnoiditis: Immunotherapies in chronic adhesive arachnoiditis – A case series and literature review https://www.sciencedirect.com/science... And another case where IV methlyprednisolone was successfully used: Idiopathic Arachnoiditis of the Cauda Equina: A Case Report from Tanzania https://www.karger.com/Article/FullTe...