Suzi’s FULL Recovery from Severe ME/CFS (after 15+ years!)
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Suzi shares her full recovery
Suzi shares her full recovery from severe ME/CFS, a 15+ year journey. In 2017, she became fully bed-bound. For the next 2.5 years, she could only walk to the toilet. At her rock bottom, she found her full path out. This is one of my MOST inspiring interviews! Starts 0:23. TIMESTAMPS below.
Summary:
Suzi Leach, now in her mid-30's, was knocked down by glandular fever at age 17 (she had some symptoms prior to that). She was soon diagnosed with ME. She had up and down periods, until a bad crash at age 30 left her fully bed-bound. For the next 2.5 years, she went deep down the diet and supplement route, and tried to perfect her pacing, but still remained in bed. She was seriously considering doing a coffee enema on the floor… when she found a new path out.
She has been fully recovered since March 2020.
TIMESTAMPS:
0:23 Intro - Suzi talks about her recent trip to Thailand
1:05 Suzi's purpose for sharing her story
1:44 How Suzi first got ill and what her GP doctor dad said
2:39 How she pushed herself & what it was like friends not understanding
3:46 Functionality levels and key symptoms in the beginning
4:22 Suzi's experience with the medical system - what she was told
5:32 Going to uni -- then crashing again at 23, what she was struggling with underneath her time at uni
6:23 What triggered the relapse at 23
8:22 Suzi's functionality levels after her crash at 23
9:39 We sadly laugh about friends not understanding - "sitting up on the sofa" being ready to party?
10:23 What does Suzi try in holistic world? A common thing people remove.
11:07 Getting herself to a point where she could work again... only to relapse again...so she went to an ME specialist who told her THIS
12:05 Mindfulness and meditation
12:43 Diet changes and reading a book on supplements
13:16 What she felt was really going on in these brief improvements
13:31 Believing she'd have to live her life differently
13:51 The worst relapse 2017-2020 (which would be her final one) and what triggered it
15:12 Feeling like she'd need to make up for things?
16:50 The intense diet changes she'd make this time
19:39 We talk about how far we went with the microbiome route. The jar!
20:29 How meditating sustained her (but what was still going on beneath it)
21:26 Pacing perfectionism
23:35 Laughing about the diet d-tours we went down (maybe you are familiar with these!)
25:06 How diet advice can be contradictory
25:59 THE FULL PATH OUT STARTS HERE
27:10 The brain retraining program she chose (over a coffee enema)
27:43 When she got over this -- is when she began to see improvement
28:01 What debilitating symptoms went away going through ANS rewire
28:48 First time outside... and a trip to the park!
30:03 What types of "exercises" did she do?
30:37 What components of ANS Rewire by Dan Neuffer helped her most? The last thing made her cry (tears of joy).
32:45 The shift from what the specialist doctor told her to seeing it like THIS instead
34:24 Hitting a plateau with brain retraining -- what she tried next that really helped
35:29 What's Mickel Therapy?
38:31 Looking at how it worked - her understanding of it
39:45 A big part of it for her
41:01 The fear of doing what you love?
43:25 The Curable Health app / Dr. Sarno
43:56 A hidden secret emotion??
45:15 The culmination of things
46:47 Telling herself "you can do this." Celebrating it -- and headphones for the Rocky Theme Tune vs to cancel noise
48:06 Gratitude. Laughing about husband shaving legs.
49:10 How gratitude had actually gotten her through from the beginning of the 2017 relapse.
50:52 Snowballing improvement - some pics
51:20 How did she start rebuilding her strength?
52:14 Suzi's first steps (20 seconds of video footage)
53:10 Listening to her nervous system, not needing rests out of control & fear. Talks about some initial activities she did.
56:08 Trip to the Lake District and climbing a fell that marks her recovery "I'm good"
57:34 Getting back into regular life, helping brother with business, exploratory phase
58:31 How she felt like the 2017-2020 relapse was it's own illness because of what she learned
1:00:08 What Suzi is doing now
1:02:24 Why helping others with CFS was difficult for me (Liz) -- Suzi says this could be why 1:04:50
1:06:40 Suzi's final words of wisdom
1:09:10 How to reach Suzi
1:10:32 DANCE VIDEO
Suzi wrote an overview of 5 key elements of her recovery here:
https://healwithliz.com/guest-post-ke...
Her blog post is just a short summary. She shares the exact programs, modalities, and more wisdom in our interview.
Connect with Suzi:
Instagram: Instagram: trustandbloom_
Suzi’s website: https://trustandbloom.co.uk
Follow me on Instagram:
Instagram: healwithlizc
*Independent Lifestyle & Nervous System Regulation Programs Guide (by myself, Liz, and Lindsay Vine):*
https://healwithliz.com/programs-guide
Keywords: Post-viral ME/CFS recovery, Severe ME/CFS recovery, Chronic Fatigue Syndrome recovery
Summary:
Suzi Leach, now in her mid-30's, was knocked down by glandular fever at age 17 (she had some symptoms prior to that). She was soon diagnosed with ME. She had up and down periods, until a bad crash at age 30 left her fully bed-bound. For the next 2.5 years, she went deep down the diet and supplement route, and tried to perfect her pacing, but still remained in bed. She was seriously considering doing a coffee enema on the floor… when she found a new path out.
She has been fully recovered since March 2020.
TIMESTAMPS:
0:23 Intro - Suzi talks about her recent trip to Thailand
1:05 Suzi's purpose for sharing her story
1:44 How Suzi first got ill and what her GP doctor dad said
2:39 How she pushed herself & what it was like friends not understanding
3:46 Functionality levels and key symptoms in the beginning
4:22 Suzi's experience with the medical system - what she was told
5:32 Going to uni -- then crashing again at 23, what she was struggling with underneath her time at uni
6:23 What triggered the relapse at 23
8:22 Suzi's functionality levels after her crash at 23
9:39 We sadly laugh about friends not understanding - "sitting up on the sofa" being ready to party?
10:23 What does Suzi try in holistic world? A common thing people remove.
11:07 Getting herself to a point where she could work again... only to relapse again...so she went to an ME specialist who told her THIS
12:05 Mindfulness and meditation
12:43 Diet changes and reading a book on supplements
13:16 What she felt was really going on in these brief improvements
13:31 Believing she'd have to live her life differently
13:51 The worst relapse 2017-2020 (which would be her final one) and what triggered it
15:12 Feeling like she'd need to make up for things?
16:50 The intense diet changes she'd make this time
19:39 We talk about how far we went with the microbiome route. The jar!
20:29 How meditating sustained her (but what was still going on beneath it)
21:26 Pacing perfectionism
23:35 Laughing about the diet d-tours we went down (maybe you are familiar with these!)
25:06 How diet advice can be contradictory
25:59 THE FULL PATH OUT STARTS HERE
27:10 The brain retraining program she chose (over a coffee enema)
27:43 When she got over this -- is when she began to see improvement
28:01 What debilitating symptoms went away going through ANS rewire
28:48 First time outside... and a trip to the park!
30:03 What types of "exercises" did she do?
30:37 What components of ANS Rewire by Dan Neuffer helped her most? The last thing made her cry (tears of joy).
32:45 The shift from what the specialist doctor told her to seeing it like THIS instead
34:24 Hitting a plateau with brain retraining -- what she tried next that really helped
35:29 What's Mickel Therapy?
38:31 Looking at how it worked - her understanding of it
39:45 A big part of it for her
41:01 The fear of doing what you love?
43:25 The Curable Health app / Dr. Sarno
43:56 A hidden secret emotion??
45:15 The culmination of things
46:47 Telling herself "you can do this." Celebrating it -- and headphones for the Rocky Theme Tune vs to cancel noise
48:06 Gratitude. Laughing about husband shaving legs.
49:10 How gratitude had actually gotten her through from the beginning of the 2017 relapse.
50:52 Snowballing improvement - some pics
51:20 How did she start rebuilding her strength?
52:14 Suzi's first steps (20 seconds of video footage)
53:10 Listening to her nervous system, not needing rests out of control & fear. Talks about some initial activities she did.
56:08 Trip to the Lake District and climbing a fell that marks her recovery "I'm good"
57:34 Getting back into regular life, helping brother with business, exploratory phase
58:31 How she felt like the 2017-2020 relapse was it's own illness because of what she learned
1:00:08 What Suzi is doing now
1:02:24 Why helping others with CFS was difficult for me (Liz) -- Suzi says this could be why 1:04:50
1:06:40 Suzi's final words of wisdom
1:09:10 How to reach Suzi
1:10:32 DANCE VIDEO
Suzi wrote an overview of 5 key elements of her recovery here:
https://healwithliz.com/guest-post-ke...
Her blog post is just a short summary. She shares the exact programs, modalities, and more wisdom in our interview.
Connect with Suzi:
Instagram: Instagram: trustandbloom_
Suzi’s website: https://trustandbloom.co.uk
Follow me on Instagram:
Instagram: healwithlizc
*Independent Lifestyle & Nervous System Regulation Programs Guide (by myself, Liz, and Lindsay Vine):*
https://healwithliz.com/programs-guide
Keywords: Post-viral ME/CFS recovery, Severe ME/CFS recovery, Chronic Fatigue Syndrome recovery
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