Choosing a New Breast Surgeon

This one is a look back at all of the chances I had to find a better match in my mastectomy team. Breast surgery is a personal procedure. I need someone who listens. If after watching this video you're interested in seeing my "dog ear", it makes a clear and prolonged appearance in the first couple of minutes of this first video on the list...  


- Related Videos:

The video that best shows my "dog ears": My Favorite Mastectomy Bras (and a pe...

The playlist of my entire Mastectomy Story: Mastectomy Story


- Resources:

If you've got Lobular Cancer, I've found that the best US experts are at: UCSF in San Francisco (Dr. Rita Mukhtar), Hoag Family Cancer Inst. in Irvine CA (Dr. Ulaner), Fred Hutch in Seattle (Medical Oncologists Drs Lindon and Davidson and Pathologist, Dr. Li) and Dana Farber in Boston (Dr. Otto Metzger).

Research labs who might know the best doctors in their areas are in... Pittsburgh: leeoesterreich.org; Aurora Colorado: sikoralab.com; and a similar one at Sloan Kettering: reis-fliho lab. European extperts are Patrick Derksen at Derksen Lab in Ulrecht in the Netherlands, and Christos Sotirio in Brussels.

Need the basics? Here's a basic overview of how cancer cells work: What Is Cancer? What Causes Cancer & ...


Chapters:
0:00 Intro
1:22 The first warning sign for me with my surgeon
2:00 How much time does your surgeon have to give you?
2:30 Won't that make my surgery delayed?
2:53 When your surgeon won't follow directions or answer questions
3:29 What questions are fair questions to demand answers to?
3:56 What constitutes informed consent, how many surgeries should you have to have?
5:00 Is this your surgery or the surgeon's? Whose team is it?
6:06 And are they experts about the right things? What do you need them to know about?
6:35 They should be experts in your KIND of cancer, if you want to be up to date
7:14 Lobular Cancer specialists are much harder to find
8:06 Are you willing to go to the next state over, if necessary? I am! I deserve it!
9:00 Recurrence is the main reason I want to stay in touch with the experts
10:04 When you don't feel trust for your surgeon: there are others!
13:20 See you in the next one!


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