Jonah aged 5 Neuroblastoma with opsoclonus myoclonus

My son Jonah aged 5 with a very clear shot of his dancing eyes. (opsoclonus myolclonus)I shot this video over the top of the hospital tv and you can see when he spots I am there. Background info: Jonah suddenly stopped walking last October and then his arms went all wobbly and then his eyes went. It took 6 weeks for the hospital in London to find the tumour. He has had a resection (operation to remove the tumour) but unfortunately the tumour is growing again. He has dexamethasone steroids IV thr

• #متفرقه
• #neuroblastoma
• #myoclonus
• #opsoclonus